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Foreword |
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xvii |
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Preface |
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xix |
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Acknowledgments |
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xxi |
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1 |
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5 |
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7 |
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Where Do You Go from Here? |
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9 |
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2 Getting Medical Help for the Person with Dementia |
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11 |
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The Evaluation of the Person with a Suspected Dementia |
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12 |
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Finding Someone to Do an Evaluation |
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15 |
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The Medical Treatment and Management of Dementia |
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16 |
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16 |
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17 |
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18 |
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The Geriatric Care Manager |
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19 |
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19 |
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3 Characteristic Behavioral Symptoms of Dementia |
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20 |
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The Brain, Behavior, and Personality: Why People with Dementia Do the Things They Do |
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20 |
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Caregiving: Some General Suggestions |
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23 |
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26 |
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Overreacting, or Catastrophic Reactions |
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27 |
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31 |
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Problems with Speech and Communication |
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32 |
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Problems the Person with Dementia Has in Making Himself Understood |
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33 |
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Problems the Person with Dementia Has in Understanding Others |
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35 |
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38 |
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41 |
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Symptoms That Are Better Sometimes and Worse at Other Times |
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42 |
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4 Problems in Independent Living |
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44 |
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44 |
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When a Person Must Give Up a Job |
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46 |
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When a Person Can No Longer Manage Money |
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47 |
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When a Person Can No Longer Drive Safely |
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48 |
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When a Person Can No Longer Live Alone |
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52 |
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When You Suspect That Someone Living Alone Is Getting Confused |
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52 |
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55 |
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Moving to a New Residence |
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55 |
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5 Problems Arising in Daily Care |
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59 |
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59 |
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60 |
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63 |
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64 |
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Highways and Parking Lots |
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64 |
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64 |
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65 |
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65 |
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66 |
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66 |
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68 |
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70 |
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70 |
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71 |
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When to Consider Tube Feeding |
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72 |
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74 |
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75 |
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78 |
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78 |
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80 |
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82 |
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82 |
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83 |
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84 |
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Incontinence (Wetting or Soiling) |
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85 |
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85 |
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89 |
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89 |
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Problems with Walking and Balance; Falling |
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91 |
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Becoming Chairbound or Bedbound |
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92 |
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94 |
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Changes You Can Make at Home |
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94 |
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Should Environments Be Cluttered or Bare? |
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96 |
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98 |
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100 |
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100 |
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101 |
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101 |
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102 |
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102 |
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103 |
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106 |
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107 |
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108 |
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109 |
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109 |
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If the Ill Person Must Enter the Hospital |
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110 |
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Seizures, Fits, or Convulsions |
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111 |
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Jerking Movements (Myoclonus) |
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113 |
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The Death of the Person with Dementia |
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113 |
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113 |
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114 |
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114 |
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Dying in the Hospital or Nursing Home |
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115 |
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When Should Treatment End? |
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115 |
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What Kind of Care Can Be Given at the End of Life? |
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116 |
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7 Behavioral Symptoms of Dementia |
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119 |
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The Six R's of Behavior Management |
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119 |
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121 |
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122 |
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Reasons That People Wander |
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122 |
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The Management of Wandering |
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124 |
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Sleep Disturbances and Night Wandering |
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130 |
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Worsening in the Evening ("Sundowning") |
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133 |
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Losing, Hoarding, or Hiding Things |
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134 |
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Rummaging in Drawers and Closets |
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135 |
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Inappropriate Sexual Behavior |
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135 |
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137 |
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138 |
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139 |
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Clinging or Persistently Following You Around |
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139 |
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140 |
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143 |
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Forgetting Telephone Calls |
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143 |
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144 |
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Stubbornness and Uncooperativeness |
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146 |
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When the Person with Dementia Insults the Sitter |
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146 |
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Using Medication to Manage Behavior |
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148 |
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8 Symptoms That Appear as Changes in Mood |
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149 |
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149 |
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150 |
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151 |
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151 |
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152 |
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152 |
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153 |
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Anxiety, Nervousness, and Restlessness |
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154 |
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False Ideas, Suspiciousness, Paranoia, and Hallucinations |
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156 |
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156 |
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Failure to Recognize People or Things (Agnosia) |
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157 |
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158 |
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"My Mother Is Coming for Me" |
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158 |
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159 |
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161 |
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Delusions and Hallucinations |
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161 |
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163 |
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9 Special Arrangements If You Become III |
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164 |
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In the Event of Your Death |
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165 |
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10 Getting Outside Help |
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168 |
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Help from Friends and Neighbors |
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168 |
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Finding Information and Services |
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169 |
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171 |
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Having Someone Come into Your Home |
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172 |
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172 |
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Short-Stay Residential Care |
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174 |
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Planning in Advance for Home Care or Day Care |
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174 |
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When the Person with Dementia Rejects the Care |
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175 |
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Your Own Feelings about Getting Respite for Yourself |
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177 |
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179 |
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181 |
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Should Respite Programs Mix People Who Have Different Problems? |
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183 |
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Determining the Quality of Services |
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184 |
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Research and Demonstration Programs |
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185 |
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11 You and the Person with Dementia as Parts of a Family |
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186 |
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188 |
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Understanding Family Conflicts |
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191 |
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Division of Responsibility |
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192 |
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194 |
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Coping with Role Changes and Family Conflict |
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194 |
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196 |
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When You Live out of Town |
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198 |
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When You Are Not the Primary Caregiver, What Can You Do to Help? |
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199 |
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200 |
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201 |
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203 |
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12 How Caring for a Person with Dementia Affects You |
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205 |
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205 |
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206 |
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209 |
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210 |
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210 |
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213 |
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213 |
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215 |
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Isolation and Feeling Alone |
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216 |
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216 |
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Being Hopeful and Being Realistic |
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216 |
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Mistreating the Person with Dementia |
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217 |
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218 |
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218 |
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219 |
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220 |
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If Your Spouse Is Impaired |
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220 |
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If Your Impaired Parent Lives with You |
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222 |
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222 |
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223 |
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When the Person You Have Cared for Dies |
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225 |
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13 Caring for Yourself |
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226 |
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227 |
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228 |
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228 |
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229 |
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Find Additional Help If You Need It |
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230 |
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Recognize the Warning Signs |
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230 |
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232 |
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Joining with Other Families: The Alzheimer's Association |
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234 |
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234 |
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235 |
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236 |
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14 For Children and Teenagers |
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238 |
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15 Financial and Legal Issues |
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242 |
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Your Financial Assessment |
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242 |
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243 |
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244 |
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Where to Look for the Forgetful Person's Resources |
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247 |
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249 |
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16 Nursing Homes and Other Living Arrangements |
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253 |
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Types of Living Arrangements |
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254 |
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Moving with the Person with Dementia |
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257 |
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Finding a Nursing Home or Other Residential Care Setting |
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263 |
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265 |
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Guidelines for Selecting a Nursing Home or Other Residential Care Facility |
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267 |
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Moving to a Nursing Home or Other Residential Care Facility |
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272 |
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274 |
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274 |
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277 |
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When Problems Occur in the Nursing Home or Other Residential Care Facility |
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278 |
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Sexual Issues in Nursing Homes or Other Care Facilities |
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280 |
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17 Brain Disorders and the Causes of Dementia |
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282 |
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282 |
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Dementia Associated with Alcohol Abuse |
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284 |
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284 |
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Vascular (Multi-Infarct) Dementia |
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286 |
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286 |
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The Frontotemporal Dementias, Including Pick Disease |
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287 |
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287 |
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288 |
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288 |
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289 |
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289 |
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Senility, Chronic Organic Brain Syndrome, Acute or Reversible Organic Brain Syndromes |
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290 |
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290 |
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290 |
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Head Injuries (Head Trauma) |
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291 |
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291 |
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292 |
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18 Research in Dementia |
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293 |
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293 |
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295 |
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Research in Vascular (Multi-Infarct) Dementia and Stroke |
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296 |
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Research in Alzheimer Disease |
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296 |
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Structural Changes in the Brain |
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296 |
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296 |
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297 |
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297 |
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298 |
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Transplants of Brain Tissue |
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298 |
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299 |
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299 |
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299 |
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300 |
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300 |
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300 |
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301 |
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301 |
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301 |
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303 |
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Promising Clinical and Research Tools |
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303 |
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304 |
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The Effect of Acute Illness on Dementia |
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305 |
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Research into the Delivery of Services |
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305 |
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306 |
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Appendix 1. Using the Internet |
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307 |
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Appendix 2. Organizations |
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309 |
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Index |
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313 |
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