Caregivers Needed for Study on LBD, FTD, Alzheimer's & Parkinson's

Caring for someone with dementia has been described as ‘the long goodbye’ and it differs considerably from providing care for someone with a medical condition who retains their cognitive abilities until the very end.  But is there any difference in the experiences between caregivers of different neurodegenerative diseases? 

LBDA’s newest research initiative explores the differences in how grief is experienced during the caregiving journey by caregivers for individuals with:

• Dementia with Lewy bodies (LBD)
• Alzheimer’s disease
• Parkinson’s disease with and without dementia
• Frontotemporal degeneration (FTD)

In addition to learning about the experiences of grief, this survey will explore the well-being and quality of life for caregivers of individuals diagnosed with these neurodegenerative diseases.

Internet access is required to participate in the study.  An estimated 500 caregivers (who are currently providing care) for each different disease being studied are needed.  

LBDA would like to thank the following media sponsors for their promotional assistance of this research effort: Family Caregiver Alliance and Alzheimer’s Foundation of America.  LBDA's appreciation also goes to the Parkinson's Disease Foundation for their promotional assistance.

To participate in the study, click here.