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The Best Booklet on Early-Onset Dementia



Early-onset dementia strikes people under 65 with Alzheimer’s. Get this information-packed 38-page booklet, offering valuable insights based on 2 decades of research.

With thousands of people under the age of 65 diagnosed with Early Onset Alzheimer’s, also known as Younger Onset Dementia, an online guide has been developed to help families and carers identify and manage the disorder in everyday life. The five-chapter, 38 page online booklet produced by the Prince of Wales Medical Research Institute (POWMRI), is based on 20 years of research and is designed to help those living with and exposed to people showing early onset dementia signs and those confirmed to have symptoms.

Professor John Hodges of POWMRI, who leads FRONTIER, the Frontotemporal Dementia Research Group, said research indicated that an increasing number of people are being identified with younger onset dementia in their forties and fifties.
Practical management covered in the booklet includes:

  • Memory and other cognitive abilities.
  • Sexuality and younger onset dementia.
  • Employment issues.
  • Driving and the law.
  • Practical tips for improving everyday life.
  • How is younger onset dementia diagnosed?
  • Management of challenging behaviours in dementia.

Younger Onset Dementia (YOD) impacts thousands of people – from the immediate family and friends to those in the community who, often by chance, have to cope with YOD sufferers.

“The booklet is a collection of information especially directed to patients and families with young onset dementia. Before this publication people would have to rely on different bits of information from different agencies, which was overwhelming and confusing,” Professor Hodges said. “It offers practical advice which is not available anywhere, much of which is specific to the families of younger patients with dementia such as the impact on teenage children.

“The booklet is very much about explaining how to identify early symptoms, understanding that dementia is not a single disorder, and providing practical advice about managing the disorder and daily life.

“It’s been written in lay terms explaining the different types of dementia, the role of genetics, how cognitive functions can be maintained and helped as the disorder begins to impact an individual and their family.

“It also has advice about important things in life like finances, legal issues, driving and the different ways to cope because people are affected differently and have different needs.”

Professor Hodges said he hopes the access to information will empower the families of people with Younger Onset Dementia in several ways:

  • Understanding better the condition they are dealing with;
  • Managing better the symptoms of the disease;
  • Planning ahead for future changes;
  • Accessing appropriate services.

“In this way we hope to reduce levels of stress and increase the ability to cope better with this terrible condition,” Professor Hodges added.

Download the guide now by clicking here.

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March 12, 2015 9:06 pm

un able to down load?

March 13, 2015 1:52 am

I know, where do you download this?

Reply to  Unknown
June 10, 2016 2:18 pm

click the little arrow on top of page

March 13, 2015 2:00 am

published in 2009
Reply to  Anonymous
March 13, 2015 12:40 pm

As helpful today as when it was first published.

March 13, 2015 3:56 am

Is there a booklet I can receive through the mail? I don't have a computer and can't download on my phone
Reply to  Anonymous
March 13, 2015 12:39 pm

I am not sure if this is offered through the mail. But as with most hi-tech problems, if you find a friendly teenager, they'll be happy to download it and print it out for you. 🙂

March 1, 2019 2:50 am

Thank you SO much for the booklet on early onset dementia. I am beginning the journey with my husband, and your booklet if full of very useful help. I am very grateful to get this!
Reply to  Crabcakes
March 1, 2019 7:26 am

You're welcome. It's a good booklet, hope it helps. , Much appreciate your post.

B. Berger

B. Berger

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This site was inspired by my Mom’s autoimmune dementia.

It is a place where we separate out the wheat from the chaffe, the important articles & videos from each week’s river of news. With a new post on Alzheimer’s or dementia appearing on the internet every 7 minutes, the site’s focus on the best information has been a help to many over the past 15 years. Thanks to our many subscribers for your supportive feedback.

The site is dedicated to all those preserving the dignity of the community of people living with dementia.

Peter Berger, Editor


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