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Bust the Stigma of Dementia

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Learn about The Alzheimer's Society of Canada's campaign to bust the stigma of dementia.
Discover 6 easy ways you can make a difference. (Video+Article)

Stigma not only hurts people with the disease but also discourages their families from confiding in others or getting the support they need.

You can help reduce stigma. Watch this video then check out the stigma-busters below.

Continued below video…

The number of Canadians with dementia will double to 1.4 million in just two short decades. People with the illness often feel excluded or treated differently by others because of stereotypes or misinformation. But people with dementia are still people who want to continue to take part in their communities and live life to the fullest.

Here are six easy ways you can make a difference:

  1. Learn the facts. Share your knowledge about dementia with others, including family and friends, especially if you hear something that isn’t true. Talking about dementia lessens our fear and increases understanding.
  2. Don’t make assumptions. Dementia is a progressive disease and affects each person differently. A
    diagnosis doesn’t mean the person will have to stop his daily routine or give up working right away.
  3. Watch your language. Do you use statements like “she’s losing it,” or “he has old-timer’s
    disease?” Don’t make light of dementia. We don’t tolerate racial jokes, yet dementia jokes are common.
  4. Treat people with dementia with respect and dignity. A person’s ability to do things we take for granted will change as the disease progresses. But no matter what stage of the disease, she’s still the person she always was, with unique abilities and needs. Appreciate who she is. Don’t talk around her or avoid her at family and social gatherings.
  5. Be a friend. People with dementia don’t want to lose their friends nor do they want to stop doing activities they enjoy. Be supportive. Stay in touch and connected. Social activity helps slow the progression of the disease and lets people with dementia know you care.
  6. Speak up! Don’t stand for media stereotypes that perpetuate stigma and myths. Call or write your local radio or television station or newspaper. Media is a powerful force in affecting how we act and think.

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January 7, 2016 5:49 am

Medicare doesn't cover Alzheimers Care, perhaps the discussion should start there. In the meantime I took my Grandmother to Transylvania, Romania through Angels Respite Program, so I could afford better care for her. Not losing her house to the spend down approach and instead, renting it out has provided better financial security for her and the family. She has been there nearly six months. We Skype regularly and she is doing very well.

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Unknown
January 7, 2013 1:28 am

Ya! It is about time we take dementia out of the closet 🙂

By:
Picture of Peter Berger

Peter Berger

With experience in dementia caregiving, public education, and Alzheimer’s-focused writing—and a professional research background shaped in what many consider one of the world’s top laboratories—I work to make complex findings clear, practical, and genuinely helpful for families and professionals providing care.

This site was inspired by my Mom’s autoimmune dementia.

It is a place where we separate out the wheat from the chafe, the important articles & videos from each week’s river of news. Google gets a new post on Alzheimer’s or dementia every 7 minutes. That can overwhelm anyone looking for help. This site filters out, focuses on and offers only the best information. it has helped hundreds of thousands of people since it debuted in 2007. Thanks to our many subscribers for your supportive feedback.

The site is dedicated to all those preserving the dignity of the community of people living with dementia.

Peter Berger, Editor

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Welcome

Alzheimer’s & Dementia Weekly was inspired by my mother’s journey with autoimmune dementia and my dad’s with Parkinson’s dementia.

Walking beside them opened my eyes to the confusion, the courage, and the deep humanity found in families and professionals caring for someone they love.

Since its debut in 2007, this site has had one clear mission:
to separate the wheat from the chaff — to highlight only the most essential articles, studies, tools, and videos from the overwhelming river of dementia-related information.
(At last count, Google receives a new post on Alzheimer’s or dementia every seven minutes.) For anyone seeking clarity or support, that constant flow can be exhausting and discouraging.

Alzheimer’s Weekly filters, translates, and explains what matters most, helping hundreds of thousands of families, clinicians, and care teams around the world make sense of the latest research and best practices.

This site is dedicated to everyone who works—often quietly and tirelessly—to preserve dignity in the community of people living with dementia.


About the Editor

With experience in dementia caregiving, public education, and Alzheimer’s-focused writing—and a professional research background shaped in what many consider one of the world’s top laboratories—I work to make complex findings clear, practical, and genuinely helpful for both families and professionals providing care.

My goal is simple:
Translate the best science into guidance that lightens the load, strengthens understanding, and helps every person with dementia live with dignity.

Peter Berger
Editor, Alzheimer’s Weekly

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