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Why is Lewy Body Dementia So Misdiagnosed?


Robin William’s wife said getting his Lewy Body diagnosis was like playing Whack-a-Mole. She would ask, “Which symptom is it this month?” See why the world’s most common dementia after Alzheimer’s is so hard to spot.


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June 19, 2016 1:06 pm

My husband has Lewy body. Younger onset, in his mid 50's. Read note about his, our journey It is mind-bending. Prayers, help appreciated.

Reply to  jane
October 20, 2017 5:44 am

I have been focussing on nutritional deficits of folks with dementia, starting with cholesterol (coconut and fish oil and LCHF/banting diets). Also Acetycholine, Gluthatione and Testosterone in men. One could supplement with testosterone, but reading up, my money is on supplementing with Zinc (50mg per day after meals), as it controls insulin levels and is stored in testes, sperm and prostate. Other supplements: B1, B6, B12, folic acid, vit d3, co-enzyme Q10. Also advising folks to cook with the organic unhydrogenated coconut oil and rub the cheaper stuff on the backs, arms and legs of their LO's twice a day. The banting or LCHF diet would help restrict sugars. They get sugar cravings, but need FAT for the HDL cholesterol, so coconut, avocado's and olive oil (salads).

Caregiving in Love
Caregiving in Love
October 15, 2017 12:04 pm

Great information, but it would be nice if the gentleman would speak slower.

Reply to  Caregiving in Love
October 16, 2017 6:04 pm

Talking too fast hard to understand

Reply to  Caregiving in Love
June 20, 2018 9:10 pm

Can't play video. There isn't an option

Reply to  Caregiving in Love
July 4, 2018 7:07 pm

Just Click on Settings, and choose a slower playback speed.

You can also speed the video up, for slow speaking presenters on a long video.

March 6, 2019 3:52 pm

Anonymous – thank you! This will help me so much in other videos!!!!

B. Berger

B. Berger

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This site was inspired by my Mom’s autoimmune dementia.

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