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50-Page Free Book on Lewy Body Dementia

FREE LBD BOOK, by America's NIH. Insights into caregiving, movement, sleep & behavior. Often misdiagnosed as Alzheimer's or Parkinson's, 1 million Americans have Lewy Body dementia. Learn more about it.
Lewy Body Dementia book cover

Lewy Body dementia (LBD), a brain disorder that can affect cognition, movement, sleep, and behavior, affects more than 1 million Americans. An important publication from the National Institutes of Health (NIH) describes LBD, offering practical advice for people with the disease and caregivers.

The free book, “Lewy Body Dementia: Information for Patients, Families, and Professionals,” will help you find out more about:

  • Types of LBD: dementia with Lewy Bodies and Parkinson’s disease dementia
  • Causes and risk factors
  • Symptoms, diagnosis, and treatment
  • Caregiving and living with LBD

The 50-page booklet is jointly published by the National Institute on Aging (NIA) and the National Institute of Neurological Disorders and Stroke, both part of NIH.

Get your copy of the book at no charge. A free link appears below.

More on LBD

What is Dementia With Lewy Bodies?

Dementia with Lewy bodies (DLB) is one of the most common types of progressive dementia. The central feature of DLB is progressive cognitive decline, combined with three additional defining features: 

  1. Pronounced “fluctuations” in alertness and attention, such as frequent drowsiness, lethargy, lengthy periods of time spent staring into space, or disorganized speech;
  2. Recurrent visual hallucinations,  and
  3. Parkinsonian motor symptoms, such as rigidity and the loss of spontaneous movement.   

People may also suffer from depression.  The symptoms of DLB are caused by the build-up of Lewy bodies – accumulated bits of alpha-synuclein protein — inside the nuclei of neurons in areas of the brain that control particular aspects of memory and motor control.  Researchers don’t know exactly why alpha-synuclein accumulates into Lewy bodies or how Lewy bodies cause the symptoms of DLB, but they do know that alpha-synuclein accumulation is also linked to Parkinson’s disease, multiple system atrophy, and several other disorders, which are referred to as the “synucleinopathies.” The similarity of symptoms between DLB and Parkinson’s disease, and between DLB and Alzheimer’s disease, can often make it difficult for a doctor to make a definitive diagnosis.

In addition, Lewy bodies are often also found in the brains of people with Parkinson’s and Alzheimer’s diseases.  These findings suggest that either DLB is related to these other causes of dementia or that an individual can have both diseases at the same time.  DLB usually occurs sporadically, in people with no known family history of the disease. However, rare familial cases have occasionally been reported.

Is there any treatment?

There is no cure for DLB.  Treatments are aimed at controlling the cognitive, psychiatric, and motor symptoms of the disorder. Acetylcholinesterase inhibitors, such as donepezil and rivastigmine, are primarily used to treat the cognitive symptoms of DLB, but they may also be of some benefit in reducing the psychiatric and motor symptoms.  Doctors tend to avoid prescribing antipsychotics for hallucinatory symptoms of DLB because of the risk that neuroleptic sensitivity could worsen the motor symptoms.  Some individuals with DLB may benefit from the use of levodopa for their rigidity and loss of spontaneous movement.

What is the prognosis?

Like Alzheimer’s disease and Parkinson’s disease, DLB is a neurodegenerative disorder that results in progressive intellectual and functional deterioration.  There are no known therapies to stop or slow the progression of DLB.  Average survival after the time of diagnosis is similar to that in Alzheimer’s disease, about 8 years, with progressively increasing disability. 

What research is being done?

The National Institute of Neurological Disorders and Stroke (NINDS) conducts research related to DLB in laboratories at the NIH and also supports additional research through grants to major medical institutions across the country. Much of this research focuses on searching for the genetic roots of DLB, exploring the molecular mechanisms of alpha-synuclein accumulation, and discovering how Lewy bodies cause the particular symptoms of DLB and the other synucleinopathies. The goal of NINDS research is to find better ways to prevent, treat, and ultimately cure disorders such as DLB.

50-Page Book from the NIH



Lewy Body Dementia: Information for Patients, Families, and Professionals

Available FREE. Read it online, download it, or order print copies.

There is no charge for this booklet, published by the U.S. Government’s National Institute of Aging and National Institute of Neurological Disorders and Stroke, under the umbrella of the National Institutes of Health.

  1. ORDER A FREE PRINTED BOOKLET (1 to 10 copies,=, mailed to you in the USA. Outside the USA, there is a 1 copy limit.)
  2. Download Free PDF.
  3. Call toll-free: 1-800-438-4380

Helpful Organizations

Lewy Body Dementia Association
912 Killian Hill Road, S.W.
Lilburn, GA   30047
lbda@lbda.org
http://www.lbda.org
Tel: Telephone: 404-935-6444 LBD Caregiver Link: 800-539-9767
Fax: 480-422-5434

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4 Comments
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Unknown
Unknown
February 6, 2015 4:05 am

Thanks for the free mail out. Not always I have time to be on my lap top. .

Mick Martin
Mick Martin
February 12, 2015 11:56 am

Thank you so much. I truly appreciate the links for downloads with anything to do with each type of dementia.

Anonymous
Anonymous
September 10, 2015 1:16 am

any chance that this can be mailed to canada?

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Euro Dementia meetings 2019
November 29, 2018 1:27 pm

It is with great pleasure we, Dementia meetings 2019 would like to express by personal gratitude to invite you to the “12th World Congress on Dementia and Alzheimer Rehabilitation” scheduled during April 11-12, 2019 in Stockholm, Sweden.
Email: parkedw18@gmail.com
Conference URL: https://dementia.psychiatryconferences.com/

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P. Berger

This site was inspired by my Mom’s autoimmune dementia.

It is a place where we separate out the wheat from the chafe, the important articles & videos from each week’s river of news. Google gets a new post on Alzheimer’s or dementia every 7 minutes. That can overwhelm anyone looking for help. This site filters out, focuses on and offers only the best information. it has helped hundreds of thousands of people since it debuted in 2007. Thanks to our many subscribers for your supportive feedback.

The site is dedicated to all those preserving the dignity of the community of people living with dementia.

Peter Berger, Editor

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This site was inspired by my Mom’s autoimmune dementia.

It is a place where we separate out the wheat from the chafe, the important articles & videos from each week’s river of news. Google gets a new post on Alzheimer’s or dementia every 7 minutes. That can overwhelm anyone looking for help. This site filters out, focuses on and offers only the best information. it has helped hundreds of thousands of people since it debuted in 2007. Thanks to our many subscribers for your supportive feedback.

The site is dedicated to all those preserving the dignity of the community of people living with dementia.

Peter Berger, Editor

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This site was inspired by my Mom’s autoimmune dementia.

It is a place where we separate out the wheat from the chafe, the important articles & videos from each week’s river of news. Google gets a new post on Alzheimer’s or dementia every 7 minutes. That can overwhelm anyone looking for help. This site filters out, focuses on and offers only the best information. It has helped hundreds of thousands of people since it debuted in 2007. Thanks to our many subscribers for your supportive feedback.

The site is dedicated to all those preserving the dignity of the community of people living with dementia.

Peter Berger, Editor

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