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You Are Not Alone: Dealing with Lewy Body Dementia

All a caregiver for Lewy Body Dementia needs to know, from symptoms to diagnosis to care for their loved one and themselves, for the entire caregiving journey. Part memoir and part help book.
Cover of the Book, "You Are Not Alone: Dealing with Lewy Body Dementia"

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Customer Reviews

A perfect guide for this journey.

  • Mari Jo — 5.0 out of 5 stars. Verified Purchase
    This book is so perfectly written. I love that it contains loads of information and support but also stories and real life scenarios too. Kathy did an absolutely phenomenal job offering everything she can in this book to support others in this difficult journey. This is truly the best Lewy Body Dementia book out there. MUST HAVE!

Plethora of information!!!!

  • Cynthia — 5.0 out of 5 stars. Verified Purchase.
    Kathy Teyler Jarrett had given this community of family members, caregivers and friends an informational library in one book! It’s everything!!!

Excellent book to keep

  • Cweller — 5.0 out of 5 starsVerified Purchase
    Easy read and well written. It’s also a helpful reference to keep. I appreciated the personal story.
  • 700+ pages.

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About the author:

Kathy Teyler Jarrett

Kathy Teyler Jarrett grew up in Illinois and Oregon. She graduated from Vassar College and then returned home to attend Portland State University. She taught English and public speaking for more than twenty years. Her marriage to her husband Ben was full of laughter, love, and travel until his diagnosis of Lewy Body Dementia, when she devoted herself to caregiving.

Since Ben’s passing, Kathy has begun a local support group for LBD caregivers. She has appeared on local TV, speaking about LBD and caregiving. She has also given webinars and talks, and was awarded Volunteer of the Year from the Lewy Body Dementia Association in 2019.

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Anonymous
Anonymous
September 3, 2025 4:17 am

Thank you for the plug. I hope to help many families dealing with this most difficult disease.

Anonymous
Anonymous
Reply to  Anonymous
September 3, 2025 4:17 am

From Kathy Teyler Jarrett

By:
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Peter Berger

With experience in dementia caregiving, public education, and Alzheimer’s-focused writing—and a professional research background shaped in what many consider one of the world’s top laboratories—I work to make complex findings clear, practical, and genuinely helpful for families and professionals providing care.

This site was inspired by my Mom’s autoimmune dementia.

It is a place where we separate out the wheat from the chafe, the important articles & videos from each week’s river of news. Google gets a new post on Alzheimer’s or dementia every 7 minutes. That can overwhelm anyone looking for help. This site filters out, focuses on and offers only the best information. it has helped hundreds of thousands of people since it debuted in 2007. Thanks to our many subscribers for your supportive feedback.

The site is dedicated to all those preserving the dignity of the community of people living with dementia.

Peter Berger, Editor

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Welcome

Alzheimer’s & Dementia Weekly was inspired by my mother’s journey with autoimmune dementia and my dad’s with Parkinson’s dementia.

Walking beside them opened my eyes to the confusion, the courage, and the deep humanity found in families and professionals caring for someone they love.

Since its debut in 2007, this site has had one clear mission:
to separate the wheat from the chaff — to highlight only the most essential articles, studies, tools, and videos from the overwhelming river of dementia-related information.
(At last count, Google receives a new post on Alzheimer’s or dementia every seven minutes.) For anyone seeking clarity or support, that constant flow can be exhausting and discouraging.

Alzheimer’s Weekly filters, translates, and explains what matters most, helping hundreds of thousands of families, clinicians, and care teams around the world make sense of the latest research and best practices.

This site is dedicated to everyone who works—often quietly and tirelessly—to preserve dignity in the community of people living with dementia.


About the Editor

With experience in dementia caregiving, public education, and Alzheimer’s-focused writing—and a professional research background shaped in what many consider one of the world’s top laboratories—I work to make complex findings clear, practical, and genuinely helpful for both families and professionals providing care.

My goal is simple:
Translate the best science into guidance that lightens the load, strengthens understanding, and helps every person with dementia live with dignity.

Peter Berger
Editor, Alzheimer’s Weekly

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