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Aricept (Donepezil) for Dementia with Lewy Bodies

There are no approved treatments for DLB, though it is the second most common type of dementia. Do drugs like donepezil hold the key?
Hong Xu, assistant professor at the Department of Neurobiology, Care Sciences and Society, Karolinska Institutet

Dementia with Lewy bodies is a type of dementia that is similar to both Alzheimer’s disease and Parkinson’s disease but studies on long-term treatments are lacking. A new study from Karolinska Institutet, published in Alzheimer’s & Dementia: The Journal of the Alzheimer’s Association, highlights the potential cognitive benefits of cholinesterase inhibitor treatments such as Aricept, also known generically as donepezil.

Lewy body disease, which includes dementia with Lewy bodies (DLB) and Parkinson’s disease with and without dementia, is the second most common neurodegenerative disorder, following Alzheimer’s disease. 

DLB accounts for approximately 10–15 per cent of dementia cases and is characterized by changes in sleep, behavior, cognition, movement, and regulation of automatic bodily functions. 

Hong Xu. Photo: Ulf Sirborn

“There are currently no approved treatments for DLB, so doctors often use drugs for Alzheimer’s disease, such as cholinesterase inhibitors and memantine, for symptom relief,” says Hong Xu, assistant professor at the Department of Neurobiology, Care Sciences and Society, Karolinska Institutet and first author of the paper. “However, the effectiveness of these treatments remains uncertain due to inconsistent trial results and limited long-term data.” 

In the current study, researchers have examined the long-term effects of cholinesterase inhibitors (ChEIs) and memantine compared with no treatment for up to ten years in 1,095 patients with DLB.

Slower cognitive decline

They found that ChEIs may slow down cognitive decline over five years compared to memantine or no treatment. ChEIs were also associated with a reduced risk of death in the first year after diagnosis. 

Maria Eriksdotter. Photo: Ulf Sirborn

“Our results highlight the potential benefits of ChEIs for patients with DLB and support updating treatment guidelines,” says Maria Eriksdotter, professor at the Department of Neurobiology, Care Sciences and Society, Karolinska Institutet and last author of the paper.  

Due to the study’s observational nature, no conclusions can be drawn about causality. The researchers did not have data on patient lifestyle habits, frailty, blood pressure, and Alzheimer’s disease co-pathology, which may have influenced the findings. Another limitation of the study is that it remains challenging to diagnose DLB accurately. 

The research was mainly financed by StratNeuro, the Center for Innovative Medicine (CIMED), the KI foundations and the Swedish Research Council.  

Publication

“Long-Term Effects of Cholinesterase Inhibitors and Memantine on Cognitive Decline, Cardiovascular Events, and Mortality in Dementia with Lewy Bodies: An up to 10-Year Follow-Up Study”, Hong Xu, Annegret Habich, Daniel Ferreira, Londos Elisabet, Eric Westman, Maria Eriksdotter, Alzheimer’s & Dementia: The Journal of the Alzheimer’s Association, online 23 August 2024, doi: 10.1002/alz.14118.

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Matt Fisher, RN Cognitive Specialist
Matt Fisher, RN Cognitive Specialist
August 27, 2024 10:32 pm

ChEIs are designed to increase Choline (a neurotransmitter associated with memory). It is also possible to increase Choline with over the counter supplements (We’ve seen good results with a product developed by Dr Datis Kharrazian called Acetyl-CH-Active by Apex Energetics (and no, I have no financial relationship with Apex or Dr K). The challenge with all of the pharmaceutical CheIs is the common side-effects of sleep disruption and stomach pain. The one exception is the Exelon Patch, which messes with sleep but not the stomach. These drugs have been very disappointing with Alzheimer’s Disease – many of my AD patients have had improved quality of life after Donepezil was stopped (and sleep improved). It’s exciting that these drugs may be effective for LBD. I would love to see a study on Choline supplements but that is unlikely without a patent.

Matt Fisher, RN Cognitive Specialist
Matt Fisher, RN Cognitive Specialist
Reply to  P. Berger
September 3, 2024 8:28 pm

Thanks for sharing – that is a great article!

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P. Berger

This site was inspired by my Mom’s autoimmune dementia.

It is a place where we separate out the wheat from the chafe, the important articles & videos from each week’s river of news. Google gets a new post on Alzheimer’s or dementia every 7 minutes. That can overwhelm anyone looking for help. This site filters out, focuses on and offers only the best information. it has helped hundreds of thousands of people since it debuted in 2007. Thanks to our many subscribers for your supportive feedback.

The site is dedicated to all those preserving the dignity of the community of people living with dementia.

Peter Berger, Editor

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This site was inspired by my Mom’s autoimmune dementia.

It is a place where we separate out the wheat from the chafe, the important articles & videos from each week’s river of news. Google gets a new post on Alzheimer’s or dementia every 7 minutes. That can overwhelm anyone looking for help. This site filters out, focuses on and offers only the best information. it has helped hundreds of thousands of people since it debuted in 2007. Thanks to our many subscribers for your supportive feedback.

The site is dedicated to all those preserving the dignity of the community of people living with dementia.

Peter Berger, Editor

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This site was inspired by my Mom’s autoimmune dementia.

It is a place where we separate out the wheat from the chafe, the important articles & videos from each week’s river of news. Google gets a new post on Alzheimer’s or dementia every 7 minutes. That can overwhelm anyone looking for help. This site filters out, focuses on and offers only the best information. It has helped hundreds of thousands of people since it debuted in 2007. Thanks to our many subscribers for your supportive feedback.

The site is dedicated to all those preserving the dignity of the community of people living with dementia.

Peter Berger, Editor

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